Our work has been embraced by the UMCG KOERS25 program as a clinical example of value based health care, and is part of the ‘Beatrix Children’s Hospital Value Gardens’. The application of artificial intelligence to moral decisions is a novel research field and results from our studies will be applicable to all kinds of morally loaded choices, both within and outside medicine. We have already established a NEC choice experiment for Dutch doctors, and are now working to extend this to parents and doctors within the European Reference Network Inherited and Congenital Anomalies (ERNICA). Similarly, parents and patient organizations are essentially involved in the development of the international Core Outcome Set. We set out to make this COS as international as possible, including high as well as middle/low income countries. This way, the COS will be applicable around the globe, both for research as well as for national and international benchmarking and the subsequent identification of best practices.
These ambitions can only be achieved via national and international multidisciplinary collaboration. We work closely together with other renowned institutions such as Great Ormond Street Hospital London, the Hospital for Sick Children in Toronto and Johns Hopkins Children’s Center in Baltimore, both on the clinical as well as the fundamental research parts. We are not only involved in ‘high tech’ fundamental studies, we are also involved in clinical and teaching projects in low and middle income countries (e.g. Tunisia, Indonesia, Curacao)
A goal for 2023 is the organization of the NoMoreNEC music festival. Originally this was supposed to be held in 2020, with several well-known Dutch musicians and bands attending. However, when COVID struck this festival had to be postponed. Hopefully we will be able to organize it in 2023, to raise both awareness and funds for one of the most dreadful diseases in preterm infants.