FAIR Data FAIR Future 2025 Symposium

Opening - Wiro Nissen, UMCG | FAIR Data, FAIR Future: Bridging Academia and Healthcare 2025

• Wiro Nissen, Dean of the faculty of medical sciences and board member of the UMCG, highlights the importance of FAIR Data and its relevance to the UMCG.
• Funded by Open Science NL, this symposium is organized by the UMCG Digital Competence Center and developed as part of the University of Groningen's Open Science Programme.

Open (the) Science – Ellen Carbo, ZonMw | FAIR Data, FAIR Future: Bridging Academia and Healthcare 2025

• Ellen Carbo, project lead “Findable and Reusable Knowledge” at ZonMw, explores why FAIR data matter and how to foster progress toward Open Science and FAIR principles.
• Presentation slides are available via Zenodo: Open (the) Science
• Funded by Open Science NL, this symposium is organized by the UMCG Digital Competence Center and developed as part of the University of Groningen's Open Science Programme.

From FAIR to FAIRer: Responsible Data-driven Research – Mirjam Plantinga, UMCG | FAIR Data, FAIR Future: Bridging Academia and Healthcare 2025

• Mirjam Plantinga, Associate Professor responsible data-driven innovation in healthcare at UMCG, explores the benefits and challenges of FAIR Data and efforts to realize better healthcare.
• Presentation slides are available via Zenodo: From FAIR to FAIRer: Responsible Data-driven Research
• Funded by Open Science NL, this symposium is organized by the UMCG Digital Competence Center and developed as part of the University of Groningen's Open Science Programme.
   

Data protection and the European Health Data Space: latest developments – Irith Kist, Netherlands Cancer Institute| FAIR Data, FAIR Future: Bridging Academia and Healthcare 2025

• Irith Kist, data protection officer at the Netherlands cancer Institute, discusses the latest developments in EU health law, as well as the characteristics of the European Health Data Space for the secondary use of healthcare data.
• Presentation slides are available via Zenodo: Data protection and the European Health Data Space: latest developments
• Funded by Open Science NL, this symposium is organized by the UMCG Digital Competence Center and developed as part of the University of Groningen's Open Science Programme.

Developing learning health systems: is FAIR the chicken or the egg? - Robert Verheij, Nivel| FAIR Data, FAIR Future: Bridging Academia and Healthcare 2025

• Robert Verheij is a Professor in ”Transparency in health care from the patient’s perspective” at Tilburg University. He also works at the Netherlands Institute for Health Services Research (Nivel) and the National Health Care institute (Zorginstituut). He talks about the 5 pillars of trust to enhance healthcare.
• Presentation slides are available via Zenodo: Developing learning health systems: is FAIR the chicken or the egg?
• Funded by Open Science NL, this symposium is organized by the UMCG Digital Competence Center and developed as part of the University of Groningen's Open Science Programme.

Public Engagement in Healthcare Research – Rhoda Schuling, Hanze| FAIR Data, FAIR Future: Bridging Academia and Healthcare 2025

• Rohda Schuling,  a senior researcher in citizen science and active lifestyle at the Hanze University of Applied Sciences, elaborates on the importance of public engagement and challenges of doing citizen science in healthcare research.
• Presentation slides are available via Zenodo: Public Engagement in Healthcare Research
• Funded by Open Science NL, this symposium is organized by the UMCG Digital Competence Center and developed as part of the University of Groningen's Open Science Programme.

Beyond FAIR - Panel Discussion – Jolanda Derks, René Oostergo, Gerard Koppelman, Robert Verheij | FAIR Data, FAIR Future: Bridging Academia and Healthcare 2025

The panel discussion dives into the obstacles that hinder the use and re-use of health data for research and innovation, with four panelists:

• Jolanda Derks – Coordinator Obstakelverwijdertraject, the obstacle removal trajectory at Health-RI;
• René Oostergo - IT and data lead biobanks and collections at Health-RI and project lead at UMCG;
• Gerard Koppelman - UMCG Pediatric Pulmonologist and Open Science ambassador;
• Robert Verheij - Professor 'Transparency in health care from the patient’s perspective” Tilburg University, “Netherlands Institute for Health Services Research” (Nivel) and the National Health Care institute (Zorginstituut)
• Funded by Open Science NL, this symposium is organized by the UMCG Digital Competence Center and developed as part of the University of Groningen's Open Science Programme.